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#1 by maria laura deverill on 8-junio-2007 - 11:14 am
Citar
por favor podrian informarme si corresponde que las empresas de larga distancia no entreguen mas de un pasaje p/discapacitado y su acompañante ya que tengo 2 hijos menores de edad que son celiacos y cuando tuve necesidad de viajar a bs as no me quisieron entregar los 2 pjes con el correspondiente acompañante. Me llamo Maria Laura vivimos en Necochea y esto fue lo que nos sucedio . Muchas gracias
#2 by Betina on 26-junio-2007 - 10:38 pm
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Soy una celiaca de Capital Federal, pedi turno en Ramsay para mi y para mi hija para obtener el certificado de discapacidad, tenemos que ir el 18 de julio con todos los papeles que nos solicitaron. En caso que no me lo den acudire a organismos como la Defensoria del Pueblo para pedir un recurso de amparo ya que se trata de una ley nacional, si hay un solo celiaco con certificado, todos deberiamos poder obtenerlo. Despues les cuento como me fue.
Betina.
#3 by Noelia on 5-julio-2007 - 3:09 pm
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Hola!!! Soy celiaca de Gran Buenos Aires, quisiera saber si tenemos algun tipo de pension.
#4 by juan carlos on 4-septiembre-2008 - 3:19 am
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hola nuevemente perdon si me equivoque con el nùmero.les comento que mi esposa es celiaca,pregunto los enfermos de celiaquia tienen algun beneficio por la discapasidad de su enfermedad,o alguna pension graciable,ya que los alimentos son muy costosos y en algun caso dificil de conseguir.gracias y suerte con esta ley que dios los vendiga.-
#5 by victoria miraglia on 6-septiembre-2008 - 8:48 pm
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hola tengo 11 años y necesitaria el listado actualizado 08 si saben de golocinas,chocolates,helados,snaks y galletitas que sean aptas por favor me pueden enviar un mail con los alimentos aptos a este e-mail: pety_miraglia@hotmail.com Muchas Gracias !
#6 by Eliana on 15-octubre-2008 - 11:27 pm
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hola, hace un mes diagnosticaron a mi hija de 2 años y medio y hoy a mi nena de 5, quisiera saber si hay algún tipo de beneficio para la adquisición de alimentos ya que los mismos son muy caros, o algún tipo de ayuda
Gracias
Eliana
#7 by Analia on 16-octubre-2008 - 7:52 pm
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hola eliana soy de el bolson rio negro, todo depende del lugar que seas, en algunas dan alimentos y en otras tickes.
anyi_ali@hotmail.com
sino entra al foro de yahoo
http://ar.groups.yahoo.com/group/celiaquia/
#8 by Maria Laura Deverill on 25-octubre-2008 - 9:31 am
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Hola,en Cap Fed la celiaquia no es tomada como una discapacidad.Salvo que,el daño haya lesionado otros organos vitales.Asi me informaron a mi el año pasado.Las pensiones o contribuciones para la compra de alimentos,lo tienen que gestionar c/u en el municipio o dependencia de asistencia social,segun el lugar donde vivan.(igual en todos los casos el Estado hace lo imposible para poner trabas)Cariños Maria Laura
#9 by Irene on 27-octubre-2008 - 4:28 pm
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Hola, soy celiaca, tengo problemas para que mi organismo asimile las pastillas anticonceptivas, hay algunas recomendadas para celiacos?
Ademas queria saber que beneficios tenemos los celiacos con domicilio en capital federal, si existe una asignacion de alimentos mensual o algo asi y como se gestiona.
Espero su respuesta. Gracias. Irene.
#10 by enzo javier carrizo on 19-diciembre-2008 - 11:50 am
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Buen dia:
Soy Enzo y vivo en Frias, Sgo. del Estero tengo 8 años, quiero saber si existe alguna pensiòn para celiacos, que me ayude a comprar golosinas y alimentos que no vienen en el modulo para celiacos, y a donde me tengo que dirigir para gestionarla si existiera.
Gracias y espero repuesta pronta
#11 by gladis on 8-febrero-2009 - 5:14 pm
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Estoy probando si sale el mail, ya lo envio si esta todo ok
#12 by gladis on 8-febrero-2009 - 5:17 pm
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ya lo envio
#13 by gladis on 8-febrero-2009 - 5:46 pm
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tengo 50 años y recién ahora me diagnosticaron,después de mucho sufrir y recorrer muchos médicos,tengo dudas relacionadas con los alimentos,en verano no hay reuniones de celíacos y quisiera conectarme con algún grupo para conocer más sobre el tema,vivo en torcuato .
quiero saber si hay personas diagnosticadas de gr
andes como yo y las consecuencias,estoy bastante desesperada y nerviosa porque como algo y después descubro que está en una lista y en otra no,además le sugerí a mi hijo de 24 que se hiciera el estudio y está muy deprimido por encontrarse con la posibilidad de ser celíaco………. hace un mes que me cuido,cuando mejoraré??
#14 by maria on 11-febrero-2009 - 6:48 pm
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hola soy María y clíaca…me gustaría saber si alguien consiguió beneficios en pasajes en micros de larga distancia cómo y dónde lo tramitó
#15 by Mabel on 13-febrero-2009 - 1:46 am
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Gladys: Se como te sentis en este momento, a mi me paso lo mismo hace 5 años, pero lo que necesitamos es tener conducta con respecto a la alimentación. Se que es dificil, pero no imposible, yo pense que no hiba a poder comer más, pero no es así. Tenemos todas las frutas, verduras, pollo, carne, pescado. Y con respecto a los fiambres y quesos yo siempre compro de 1ra calidad: la serenisima, sancor, eso si fiambre como poco porque es dificil que limpien la máquina antes de cortarlo para que no se contamine. Si tenés una reunión, te llevas la vianda o comés en tu casa….. pensá que vos podes. Besos, para que te quedes tranquila mis hijos no son celiacos. Besos
#16 by gladis on 13-febrero-2009 - 9:17 pm
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gracias mabel!! puedo comer yogurt ser firme de frutilla y vainilla! vida de sancor???
#17 by gladis on 13-febrero-2009 - 9:25 pm
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y yakul??
#18 by anahi on 23-febrero-2009 - 11:53 pm
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hola soy anhi tengo una hija de 8 años que es celiaca vivimos en lincoln quisiera saber como puedo conseguir el listado de alimentos de este año
gracias
#19 by natalia on 29-marzo-2009 - 3:18 pm
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soy de lincoln y no me quieren dar el certificado de discapacidad porque algunos si y otros no es injusto
#20 by johanna on 30-marzo-2009 - 1:33 pm
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Hola a todos, tengo 22 años y toda mi vida la transcurri como celiaca. la verdad me ofrezco para asesorar en el tema de las comidas a quienes se encuentren perdidos… en mi familia no lo vivimos como una enfermedad, sino como una dieta a la que no se puede alterar. creo que el cambio para una mejor calidad de vida como celiaco empieza a demas de la dieta con un cambio en nuestras mentes y es fundamental el apoyo de las familias
un abrazo!!
#21 by soledad on 2-abril-2009 - 1:12 pm
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hola soy celiaca y mama de una nena de 8 años tambien celiaca les dejo mi correo para quien quiera contactase.saludos
soledadvillalba08@hotmail.com
#22 by soledad on 2-abril-2009 - 1:14 pm
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hola!!! soy celiaca y mama de una nena celiaca les dejo mi correo xq si quieren contactarse conmigo.saludos
soledadvillalba08@hotmail.com
#23 by ANDREA on 3-abril-2009 - 5:03 pm
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HOLA LES CUENTO QUE TENGO UNA HIJA DE 6 AÑOS DIAGNOSTICADA HACE UN AÑO Y QUIERO CONTARLES QU HACE UNOS MESES MI OBRA SOCIAL (OSSEG) ME ACEPTO LA PETICION DE UN SUBSIDIO YA QUE LA UNICA MEDICINA PARA LOS CELIACOS ES SU ALIMENTACION… ESPERO QUE LES SIRVA LA DATA Y SI LA OBRA SOCIAL NO ACEPTA O NO TIENEN RECURRAN A LA MUNICIPALIDAD QUE LES PERTENEZCA SE QUE ALLI TAMBIEN DAN CAJAS DE ALIMENTOS
#24 by Estefi on 15-abril-2009 - 3:44 pm
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Hola!
Hace una semana me enteré que soy celíaca, tengo 23 años…se me es difícil de aceptar…se que con el tiempo me voy a acostumbrar…creo que ésto lo entienden mejor los que los padecen…Todavía estoy investigando todo lo que puedo y no puedo hacer. Por lo tanto me gustaría que me envien información de todo tipo.
Saludos y Muchas Gracias!!
#25 by anahi on 17-abril-2009 - 8:39 pm
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hola como estan soy anahi mi hija es celiaca yo me hice los analisis y los resultados recien me llegaronson:antitransglutaminasa( Iga) es de 1.6 y inmunoglobina A (Iga) es de 348 alguien me puede decir si estan bien o no porque faltan varios dias para que el medico vea los resultados gracias espero su repuesta
#26 by Tef on 19-abril-2009 - 10:34 am
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Hola, tengo 21 años y hace unos días me enteré que soy celíaca. Les quería solicitar cualquier tipo de ifnormación, recomendación y sugerencia ya que aún estoy interiorizándome sobre el tema.
Muchas gracias!
saludos,
tef.
#27 by analia on 23-abril-2009 - 4:41 pm
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Hola. Tengo una hija celiaca de 11 años.
Por favor dejen sus mails!!
anyi_ali@hotmail.com
#28 by Antonella on 24-abril-2009 - 12:15 am
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Hola soy Antonella, estoy queriendo empezar el trámite para el certificado de discapacidad y ando bastante perdida. En las páginas oficiales de los organismos del gobierno no aparece nada sobre la celiaquía y cuando llamo tampoco son muy informativos. Hay alguien que lo haya hecho que me pueda pasar los requisitos y formularios que hay que presentar?
Muchas gracias
Antonella
#29 by alejandra on 24-abril-2009 - 10:51 am
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hola soy alejandra jujuy- argentina y soy celiaca desde que naci..tengo 16 años y quisiera tener amigos que tengan la misma enfermedad ya que todavia no conozco a alguien que la tenga..muchos bss y saludos….
#30 by lucia on 28-abril-2009 - 9:41 pm
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hola soy lucia de rio 4 y soy celiaca. les cuento que tengo 20 años y hace ya 11 años aproximandamente que padezco de la enfermedad.les comento que despues de miles de tramites que han hecho mis padres junto conmigo he conseguido que el estado me entregue una pension de 200 pesos mensual, pero con el transcurso del tiempo me he dado cuernta q ese monto no alcanza para nada ya que los alimentos para celiacos poseen precios muy elevados! mi inquietud es saber si habria alguna posibilidad de hacer algo para aumentar dicha pension, seria bueno que desde cad lugar insentivemos esta cuestion ya que no somos pocos (de cad 10 personas hay 1 celiaco y obviamente 5 que desconocen tenerla). saludos
#31 by veronica sainz on 29-abril-2009 - 1:49 pm
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hola soy veronica sainz de salto pcia de bs as coordino un grupo de celiacos,hace 6 años fui dignosticada,en mi ciudad gracias a la difusion y concientizacion cada dia son mas los celiacos diagnosticados..Alejandra de jujuy estoy para lo que necesites besos vero..
#32 by Nenina on 1-mayo-2009 - 8:02 pm
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Hola soy Nenina, tengo 59 años y hace 5 me diagnosticaron, el lunes me voy a hacer una biopsia y colonoscopia(esto por miedad) todo por control. Tengo el mismo problema de todos, lo costoso de los alimentos, tengo IOMA que no me da los alimentos, y en Acción Social de la Municipalidad de Ranchos tampoco, solo le dan a los carenciados, aceite de maiz y galleta de arroz. Que bien que estamos en políticas de salud. VERGONZOSO!!!!!
#33 by maria on 3-mayo-2009 - 11:53 pm
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porque sacaron mi comentario?…
#34 by SoyCeliaca.com.ar on 4-mayo-2009 - 5:57 am
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Porque no era apropiado y usabas lenguaje no ATP
#35 by Myriam on 4-mayo-2009 - 8:16 am
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Hola,hace 3 años que padezco el problema de celiaquía y hasta ahora lleve mi vida completamente normal;pero hace 1 mes atrás inicié los trámites para tener Obra Social y me rechazaron justamente por ser Celíaca!!me parece irracional y totalmente injusto que un sistema de salud reaccione así.O es que acaso para tener Obra Social no hay que estar enfermo?me gustaría saber que puedo hacer ante esta situación.Gracias
#36 by Mariana on 4-mayo-2009 - 3:35 pm
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HOLA, MI NOMBRE ES MARIANA, VIVO EN FORMOSA, TENGO UN HIJO CELIACO DE 6 AÑOS DIAGNOSTICADO AL AÑO DE VIDA!!! EN MI PROVINCIA FORMAMOS UNA FUNDACION PARA AYUDARNOS ENTRE TODOS LOS CELIACOS, QUE SOMOS MUCHOS…PUEDEN VISITAR LA PAGINA http://www.celiacosenredformosa.blogspot.com
PARA CUALQUIER CONSULTA, RECETAS, AYUDA, COMENTARIOS…ENTRE TODOS PIDAMOS LA LEY CELIACA!!! UN ABRAZO DESDE EL NORTE.
#37 by Mariana on 4-mayo-2009 - 3:37 pm
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MI MAIL ES rusacorrales22@hotmail.com PARA LO QUE PUEDA AYUDAR!!! UN CONSEJO, UN COMENTARIO, UNA RECETA…TODO SIRVE PARA DARNOS FUERZA, SOBRE TODO PARA LOS QUE RECIEN EMPIEZAN EN ESTA LUCHA PARA LOGRAR UNA VIDA LIBRE DE GLUTEN!!!
#38 by claudia on 11-mayo-2009 - 3:26 pm
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hola quisiera saber si hay algun anticonceptivo que puedan tomar los celiacos, gracias
#39 by natalia on 19-mayo-2009 - 3:44 pm
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hola quisiera saber como puedo hacer para optener el libro de alimentos y medicamentos apto para celiacos o como puedo hacer para bajarlo de la compu muchas gracias natalia
#40 by Analía on 20-mayo-2009 - 1:08 pm
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Gente dejen sus mails!!
Soy Analía de El Bolsón . Rio Negro , mi hija de 11 años es celiaca.
anyi_ali@hotmail.com
#41 by lorena on 20-mayo-2009 - 6:19 pm
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Claudia de laboratorios bayer, roemmers, temis lostalo, ivax argentina podemos consumir todos sus medicamentos, tendrías que consultar con el médico y que te recete anticonceptivos de éstos laboratorios.
Espero haberte ayudado
Besos, y estoy para lo que necesiten
#42 by carolina de salta on 15-junio-2009 - 12:51 am
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podrian informarme porfavor con mas intensidad lo de la discapacidad y su beneficio, donde hago el tramite, mi mail es carolinasoledad@hotmail.com desde ya muchas gracias
#43 by gabriela on 25-junio-2009 - 4:59 pm
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soy celiaca queria saber como tramitar la pencion soy sola tengo 2 nenas en estos momento estoy sin trabajar por ke estoy con un problemas de huesos y me esta dificultando trabajar y vivo en la casa de una amiga y tengo estoporocis les agradeceria que me orienten
#44 by mariana on 11-julio-2009 - 4:46 pm
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hola soy mama de una nena de 3 recien diagnosticada con la enfermedad, quisiera saber donde conseguir el catalogo de maecas de los productos y toda la informacion de recetas que me puedan facilitar…un beso y gracias(pcia de bs as)
#45 by Marcela on 16-julio-2009 - 4:05 pm
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Hola que tal! Necesitaría que me ayuden respecto al tema. Tengo un nene de 4 años que presentaba todos los síntomas del celíaco. Se le hizo inclusive una biopcia que dió negativa, pero previo a ello unos 20 días antes de hacerla habíamos suspendido una dieta sin gluten de casi 4 meses porque la alergista lo había indicado. Posteriormente me entero que es muy malo hacer esa dieta sin estar diagnosticado y que esa dieta previa puede haber modificado el resultado verdadero de la biopcia. Espero vtra. ayuda. Gracias!!!! mi mail es marcebock@yahoo.com.ar
#46 by adriana on 17-julio-2009 - 3:46 pm
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Marcela: tengo una nena con clinica y anticuerpos positivos, no le hicimos biopsia porq estaba en muy mal estado general, comenzamos la dieta y recien al año los analisis dieron negativos y demas esta decir que su estado general mejoro enormemente. Con respecto a lo que preguntas, es relativo se supone que en el tiempo que dejaste la dieta incluiste gluten no?lo que podria haber pasado que en vez de darte grado 4 te diera grado 1, pero tambien hay que ver de donde tomaron muestras del intestino y cuantas muestras tomaron, porque a veces las lesiones se hacen por parches es decir que quedan partes sanas de intestino, pero si la clinica y los analisis fueron positivos, deberias consultar con un gastroenterologo y no con un alergista, yo se que en La Plata en el hospital Sor Maria Ludovica estan analizando las biopsias negativas con analisis y clinica positiva, Dr. Cueto Rua.
Bueno espero haberte ayudado
#47 by Horacio Gaitán on 16-agosto-2009 - 12:26 pm
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hola, me llamo horacio, tengo 26 años y me diagnosticaron celíaquia cuando tenia cuatro años. Como vivo en un pueblito alejado de todo en la provincia de la rioja, aca no hay especialistas en el tema. Lo mas cerca que tengo es cordoba, lo cual me llevaria un gasto enorme, ya que no dispongo de buena posición económica. Mi consulta es la siguiente… a veces cuando voy al baño, mi materia fecal es mas oscura de lo normal y muy aguada. Me sorprende, pero hago bien la dieta y no se a que se debe. Por favor, alguien me podria decir ó dar un indicio de a que se debe esto…muchas gracias…
#48 by Marta Miranda on 21-agosto-2009 - 10:37 am
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Hola soy Marta de La Pampa,tengo 3 hijos celiacos y mi situacion economica no es buena, me gustaria q alguien me pudiera orientar donde tengo q hacer trámites para pasajes sin costo ya q tengo q llevar mis hijos a control a 200 km y la municipalidad de mi pueblo no me ayuda en nada por tener mis hijos obra social.Espero q alguien me pueda ayudar a resolver mi situación tan dificil. Gracias
#49 by paula poli on 26-agosto-2009 - 3:41 pm
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hola. en el dia de ayer me entere que soy celiaca, aun no entiendo nada, en mi familia nadie la tiene y tengo 2 nenas pequeñas que tal vez puedan tenerla.. mi mail es polyrodry@hotmail.com les agradeceria a aquellos que quieran ayudarme a pasar este momento, y me brinden de informacion.. como es eso del colectivo? yo viajo todos los dias, y con los precios de los alimentos veo que se me va a complicar mucho.. espero sus mensajes. Muchas Gracias
#50 by agustin on 27-agosto-2009 - 6:34 pm
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hola. somos 2 hermanos celiacos. pero al mas grande le dijeron que al cumplir 18 años ya no puede recibir la pension nacional. ¿Es asi o no? si alguien me puede dar alguna respuesta se lo voy a agradecer o algun dato. saludos y gracias
#51 by ROMINA on 2-octubre-2009 - 9:43 pm
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hola soy de necochea y tengo una hija de 6 años celiaca y queria saber si se puede adquirir un auto a menor precio con el certific. de discap. y si se pude poner la calco de discap en mi vehiculo actual.. muchas gracias
#52 by denise morelli on 6-octubre-2009 - 4:46 pm
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hola soy denis tengo dos hijas celiacas..y quisiera saber como tener un beneficio para ellas ya que en la munisipalidad de lanus este …me dan una caja cada 5 meses con 5 paquetes de premesclas para las dos nenas.. no alcansa para nada nisiquiera para dos dia de comida.si saben de algun beneficio dejo mi telefono para que me llamen 4220-3608..desde ya muchas gracias …y que dios los bendiga
#53 by Magalí on 7-octubre-2009 - 1:45 pm
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hola tengo 22 años y me diagonosticaron qeu era celiaca hace 2 meses, desde esa fecha es que realizo la dieta sin glútten. Mi consulta es poruqe hace 4 meses, 2 ellos realizando la dieta, estoy con diarrea y no me logra regularizar. esto será normal?
me gustaría hablar con alguien que halla pasado por lo mismo
#54 by estefania on 10-octubre-2009 - 7:35 pm
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hola soy la mama de felipe tiene tres años casi me muuero cuando lo via mal y no sabiamos que era en enero de este año nos informaron que era celiaco se atiende en en garraham buenisimo ahora feli es un nene feliz y con respecto a los listados yo soy una ama de casa con una beba y me es imposible ir a reuniones por eso trato de hacerle comidas naturales vamos con el puchero,polenta,polenta de pizza,arroz con huevo,hamburguesa con pure,pollo,con papas hay muchas comidas que no necesitan lista vamos hay que ganarle al comercio .
otra cosA QUE PROPONGO ES PONER UN PESO CADA UNO Y PASARNOS LOS LISTADOS RENOBADOS. BESOS
#55 by Cesar on 13-octubre-2009 - 4:23 pm
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hola, soy Cesar, tengo 27 años, celiaco oficial desde los 25, estudio sonido y quiero conocer celiacos de Cap.Fed y/o zona sur ( Bernal – Quilmes )
mi mail es : noncesar@hotmail.com
#56 by christian on 21-octubre-2009 - 7:29 pm
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queria saver como se puede sacar el certificado de discapacidad , ya que en el ramsay me dicen que la enfermedad celiaca no es una discapacidad, yo lei este articulo y mande un mail y me respondieron que no se dan certificados de discapacidad, les agradeceria que me dijeran como hay que hacer y que hay que llevar, yo tengo a mi hija que es celiaca y se atiende en el hospital garrahan, nosotros somos de lanus desde ya muchas gracias
#57 by ceferino angel espindola on 21-diciembre-2009 - 1:35 pm
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es la primera ves que envio un mje y me gustaria saber si hay quien tenga otorgado el certificado de discapacidad por enfermedad celiaca, cariños yo aparte tengo mal de chagas y asma bronquial
#58 by valentina on 29-diciembre-2009 - 3:45 pm
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HACE 2 MESES QUE ME DIAGNOSTICARON CELIAQUIA LUEGO DE HABER PADECIDO MUCHOS PROBLEMAS DE LA SALUD QUE CASI ME LLEVAN A PERDER LA VISION. HOY ESTOY RECUPERANDOME LENTAMENTE…. NO SE SI ESTA ENFERMEDAD SOLA BASTA PARA LA PENSION PERO SI ASOCIADA A OTRAS COMO CHAGAS ASMA DIABETES. ESPERO SIRVA LA INFORMACION TODO COMO COMIENZO ES DIFICIL PERO A NO DESESPERAR!!!!
#59 by sol on 13-enero-2010 - 1:45 pm
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Hola soy mama de una nena celiaca y quisiera saber si en la Prov.de Rio Negro tambien los celiacos son discapacitados vicerales ?
espero su respuesta muchas gracias
#60 by Celia on 21-enero-2010 - 7:24 am
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Hola soy celiaca vivimos a 90km de Lincoln…..y como lei otros comentarios no nos quieren confirmar que ser celiaco es ser discapacitado.. por favor como se cuede hacer para tramitar….y si me pudieran decir si somos discapacitados…desde ya muchas gracias….
#61 by lau on 15-febrero-2010 - 6:55 pm
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hola los tramites los podes tramitar en la municipalidad y el de la pension para celiacos que si la hay. en desarrollo social.y si somos discapacitados vicerales.
#62 by Ezequiel on 17-febrero-2010 - 4:29 pm
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Buenas tardes, me dirijo a ustedes para hacerles la siguiente consulta.
Como celíaco la obra social debe brindarte o reintegrarte alimentación? y hay algùn tipo de pensión por ser celíaco?
#63 by Cecilia on 17-febrero-2010 - 7:06 pm
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Buenas tardes, soy Cecilia Aragón, de San Salvador de Jujuy, estoy haciendo un proyecto de investigacion de mercado sobre el amaranto, puesto que en la provincia de Salta se esta produciendo, nos encontramos en la necesidad de averiguar la demanda potencial, es por ello que estamos apuntando como uno de los nichos de mercado a los enfermos de celiaquia, si bien estamos haciendo una investigacion muy profunda, hay muchos datos que son muy dificiles de encontrar, por ello me dirijo a ustedes para solicitarles su colaboración, algunas de las preguntas son:
cuantos celiacos hay en argentina, en salta y en jujuy?
donde se encuentra la mayor cantidad de celiacos?
cual es el consumo individual mensual?
en que periodo se consume mas?
sabemos que los productos son muy costosos, es por ello que una de nuestras inquietudes es saber cuanto gasta una persona celiaca mensualmente, ya que uno de nuestros objetivos es que la gente de bajos recursos tenga facil acceso, por lo menos a este producto.
cual fue la evolucion o el crecimiento en los ultimos 3 años de celiacos?
una persona celiaca, conoce las propiedades del amaranto?
Desde ya muchas gracias.
#64 by stella on 24-febrero-2010 - 8:50 pm
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Hola, hace poco me diagosticaron celiaquía, esto demoro 4 años y trajo muchos problemas a mi salud, desde convulciones, abortos espontaneos, fracturas espontaneas, diabetes,tiroidismo, etc.
Mi pregunta es la siguiente,solo dispongo de un analisis ya que no me quisieron hacer la biopsia, con eso solo puedo tramitar alguna pension ya que casi no puedo caminar por causa de fractura y desplazamiento de vertebra, ademas de sufrir convulciones.
Desde ya muchas gracias Stella.
Ah me olvide decir que vivo en La Pampa y es muy dificil conseguir productos sin gluten.
#65 by stella on 25-febrero-2010 - 8:29 pm
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Hola quisiera comentar que tengan cuidado con el queso THOLEM untable, tiene el logo de sin tacc y no es verdad, por comer solo una cucharita estoy muy descompuesta. Gracias. Stella
#66 by LAU on 22-marzo-2010 - 8:36 pm
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SOY CELIACA ASE ONSE AÑOS FUI ANEMICA CRONICA EN LA CUL SOY SUPER NERVIOSA Y FALTA DE CONCENTRACION YO RESIBIA LA MERCADERIA EN LA MUNICIPALIDAD Y AHORA Q IVAN A CAMBIAR LA MERCADERIA A TARJETA M PREGUN TARON S ERA CASADA Y LES DIJ Q SI Y ME DIJIERON Q SE AGA CARG LA OBRA SOCIAL Y N SABEN NADA Q ASER LA OBRA SOCIAL DEL TELEGRAFO O SEA EL CARTERO Y COMO INFORMARM ASRCA DEL PASE DEL BOLETO POR FAFOR
#67 by Maria Elena on 28-marzo-2010 - 7:18 pm
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Favor de informarme ante que organismo en Mar del Plata puedo pedir el pase gratis de colectivos de larga distancia.-
Desde ya muchas gracias
Maria Elena
#68 by manuel on 1-abril-2010 - 11:55 pm
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hola que tal?…hace poco me entere que era celiaco y queria saber como es esto del pasaje y demas…me entere hace 3 meses y todavia estoy descubriendo comidas y demas…soy estudiante y la verdad me interesaria saber mas sobre mi enfermedad ya que mis medicos me brindaron una informacion muy basica…desde ya cualquier informacion que puedan brindarme estare agradecido…y sobre los pasajes tambien por favor….gracias….manuel
#69 by maria elena on 4-abril-2010 - 4:43 pm
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soy de cosquin ,provincia de cordoba y deseo saber si tengo derecho a viajes sin costoa en mediana y larga distancia y/a algun subsidio por el alto costo de los medicamenteos y alimentacion
#70 by Patricia on 7-abril-2010 - 4:24 pm
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Mi nombre es Patricia, tengo 44 años, vivo en Rosario, me diagnosticaron que soy celíaca el año pasado y en verdad no lo tengo para nada incorporado, estoy sin trabajo hace varios meses y como lo que puedo, si hay gente de rosario por favor que se contacte por ésta página y me indique como pedir ayuda y a quien dirigirme.
Gracias
#71 by petty on 8-abril-2010 - 2:52 pm
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soy Petty de Tucuman me descubrieron la celiaquia despues de 5 años de no saber q tenia pero mi salud iba en brusca caida…
acabo de enterarme por este medio, q existen las pensiones para celiacos!!! OH casualidad en el pueblo donde vivo me dijeron q no existia tal pension, consegui tramitar una pero x osteoporosis. Desde q empece con la dieta soy otra persona me cambio la vida , crei q era lo peor pero esto con ganas se supera y bueno NUESTRA DIETA ES RICA , O ¿NO? aprendi a cocinar y resulte muy buena (eso creo)ja ja ;ahora tengo ganas de hacer cosas(antes no tenia ganas de nada)estoy estudiando en una nocturna , tengo 4 hijos x suerte sanos todos. beosos a todos
#72 by petty on 8-abril-2010 - 3:05 pm
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UHP perdon me olvide de darles mi mail:anavi_sister@hotmail.com
comuniquense si decean alguna de mis recetas jajaja
hago empanadas de pollo y matambre muy ricas,
canelones de choclos, empanadillas , bombas de crema y muchas mas.
SABEN QUE SOLO HAY QUE PONERLE GANAS A TODO.
UN SECRETO MUY IMPORTANTE APRENDER A QUERERSE.CHAU
#73 by mariela on 9-abril-2010 - 1:28 am
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hola soy mariela hace 20 años me descubrieron la enfermedad, quisiera saber que novedades hay de si existe alguna pension o sobre poder viajar sin cargo a diferentes lugares? desde ya mucha gracias
#74 by cristian on 20-abril-2010 - 10:16 pm
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hola soy cristian de cordoba, y queria saber si la ley celiaca que contempla el beneficio de $200 mas o menos, si esta vigente; para el consumo de los alimentos aptos para celiacos que debo reclamar a la obra social correspondientey cual es la ley o el articulo que la comtempla, ya que escuche un comentario de lo anteriormente mencionado y no logro conseguir la informacion en la web.-
agradezco desde ya su colaboracion.-
cristian melchiorre
#75 by luciana on 23-abril-2010 - 10:19 am
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hola, soy luciana, de villa maria,soy celiaca de nacimiento y recien ahora con 32 años me entero que tenemos algunos beneficios, por eso queria saber si en verdad se puede tramirar el pase libre de colectivos de larga distancia o algun subsidio para alimentos, y donde puedo tramitarlos .Desde ya muchas gracias.
#76 by Rosario on 23-abril-2010 - 9:00 pm
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Padezco de celiaquía desde los 10 años, diagnosticada recien hace 15años. paso mi correo para los que padecen esta enfermedad y quieran conectarse conmigo.
imillanavas@yahoo.com.ar
#77 by Rosario on 23-abril-2010 - 9:03 pm
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quisiera conectarme con los que padecen celiaquia. Si en algo puedo ayudar.
mi correo imillanavas@ yahoo.com.ar
#78 by Carina on 27-abril-2010 - 10:37 pm
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Hola, mi hija es celiaca y quisiera que me den informacion sobre los subsidios de ANSES. Tambien si las obras sociales tienen alguna prestacion para esta enfermedad. Y con respecto a libre pasaje de colectivo que hay de cierto en eso? en cada caso como hago para obtener cada uno de esos beneficios? que tramite debo hacer? Donde puedo obtener un listado sin gluten actualizado?
#79 by sandra amalia campos on 9-mayo-2010 - 2:05 am
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hola quisiera saber cuanto de porcentaje debo tener para resivir mis veneficios como por ejem pase gratuitos en medios de trasportes locales y nacionales y si debo reciir alguna pencion y bolson del alimento ya que es muy caro y me es imposible compra yo con lo unico que me venificio es con la obra social osprera para la atencio medica nada mas
#80 by lorena on 9-mayo-2010 - 7:02 pm
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“LA COCINA DE LIS”
COSITAS RICAS PARA CELIACOS!!!!
Distribuidora de Productos Sin TACC – Tenemos todas las marcas:
Chocokrispis Lheritier Dimax Natuel
Mapsa Canale Tante Gretty La Yapa
Emeth Molto Toblerone Yummy
Blue Patna Alco / Del Campo Urquiza Chocolino
Soyarroz Alicante Esp. Ballina Cerealitas
Bon Wert Gomes Da Costa Arrozen Carrefour
C `bon Puglisi Sturla / Nutrisur Nutrisur
Hellmann`s Segrain Del Campo Le.Q
Granja Iris Kapac / Carrefour Dia % – Orieta Bocatti
Steineke Nectary Nachos Marrakesh
La Morenita Nescafe Mantecol Nucrem
La Virginia Santa Maria La Paulina Ilolay
Taragui La Delfina Sancor Manfrith
Nora S`kills Aglu / Rivara Señor del Sipan Fleiss
Envios al interior – lista de precios y consultas a:
lacocinadelis@gmail.com
telefonos 011-1569556287 / 0221- 471-2433
#81 by Cynthia on 11-mayo-2010 - 2:29 pm
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Hola queria saber si alguien fue a Osde a preguntar sobre los descuentos que ellos deberian otorgar.
http://www.26noticias.com.ar/prepaga-debe-descontar-en-harina-para-celiacos-107221.html
Por otro lado queria saber si alguien fue a la calle Ramsay averiguar por el certificado de discapacidad.
saludos
#82 by olga on 25-mayo-2010 - 12:03 am
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Hola, soy celiaca descubierta hace poco tiempo, estube leyendo lo escrito y quiero contarle lo que consegui hasta ahora.
En principio fui a Ramsay, a tramitar dos posibles discapacidades discapacidades las dos vicerales,una discapacidad respiratoria (epoc), razon por la cual tengo hoy un certificado de discpacidad, la otra la celiaquia, quiero decirles que por tener esta enfermedad, el intituto no te considera un discapasitado porque lo unico que no podes hacer es comer con gluten , esto no te impide trabajar, ni hacer cualquier actividad que quieras, tampoco podes tramitar una pension, y en cuanto a los alimentos el tramite es larguisimo, yo tengo obra social (osecac)que no me cubre ni un caramelo, y para poder acceder a la caja que trae 10 articulos tengo que hacer 800 cosas no entienden que mi obra social la tengo por que mi esposo, es legal y paga el monotributo y me tiene a cargo,o sea si no pagas sos casi un delincuente y si pagas bueno sos pudiente (puaj) ya que debido a mi enfermedad tuve que deja de trabajar, conclucion, solo nos tenemos entre nosotros, ayudemosnos ya que asi podremos idear para poder pedir en grupo y alomejor solo alomejor y jodiendo nos escuchen les dejo mi mail, y estoy a disposicion de todos ustedes olguy
#83 by olga on 25-mayo-2010 - 12:06 am
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Perdon , mi mail omitao5@hotmail.com olguy
#84 by Noelia on 9-junio-2010 - 12:01 am
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Hola, soy mamá de una nena de 2 años,la cual comenzó con problemas gastrointestinales, en el mes de enero, y hace un mes, se le confirmó que es celíaca. me gustaría que me brinden información sobre subsidios, si es que hay. o si las obras sociales tienen que reconocer algo de los alimentos. muchas gracias
#85 by CECIILIA on 13-junio-2010 - 6:15 pm
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HOLA QUERIA INFORMARME CUALES SON LAS PRESTACIONES Y SERVICIOS Q OTORGA IOMA DESDE Q SE APROBO LA LEY
#86 by olga on 14-junio-2010 - 9:39 pm
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hola tengo una hija celiaca quisiera saber si por medio de la obra social tengo que recibir algun beneficio ya sea alimentos u otras cosas .en mi caso recibo del municipio una caja de alimentos cada 3 o 4 meses , quisiera saber si esta bien o me lo tienen que dar cada mes en caso contrario donde tengo que hacer el reclamo? gracias..
#87 by robinson on 20-junio-2010 - 7:47 pm
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HOLA NUEVAMENTE YO ROBINSON MAX MONTERO (STA ROSA. LA PAMPA). NESECITO QUE TODO LOS ENFERMOS CELIACOS DE LA PROVINCIA DE LA PAMPA, SE COMUNIQUEN CONMIGO, PARA ARMAR UNA ONG(SIN FINES DE LUCRO), ASI TRAMITAR BENEFICIOS PARA TODO AQUELLOS QUE LO NECESITEN, ESTO DEPENDE DE JUNTARNOS Y ASI TENER MAS FUERZA A LA HORA DE NUESTROS PEDIDOOS, XQ NO SOLO SOMOS ENFERMOS CELIACOS, SINO QUE NOS CATEGORIZAN CON DISCAPACIDAD VISERAL, SE PUEDE CONSULTAR CON ABOGADOS PARA COMO RECURRIR A UN RECURSO DE AMPARO, A INADIS PRESENTANDOLES NUESTRO PROBLEMAS Y QUE SOMOS DISCRIMINADOS. HAY MUCHAS COSAS POR HACER, URGENTE ARMEMOS ALGO Y AYUDEMONOS NOSOTROS MISMO VA SER LA MEJOR MANERA, SINO NADIE MAS LO VA HACER UNIDOS LOGRAREMOS ALGO PARA INICIAR.
MONTEROROBINSON@HOTMAIL.COM ELBADELC12@YAHOO.COM.AR
CELULAR: 02954- 15-698041
#88 by robinson on 20-junio-2010 - 7:54 pm
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ENFERMOS CELIACOS DE TODA LA PROVINCIA DE LA PAMPA.
TOY INTENTANDO POR TODO LOS MEDIOS COMUNICARME CON USTDES, PARA CONFORMAR UNA ONG, SIN FINES DE LUCRO, Y ASI PODER LOGRAR QUE EL GOV. DE NUESTRA PROV. Y GOB. NACIONAL. DEN LAS AYUDAS NECESARIAS, ASI TENGAN OBRA SOCIAL, ESTEN TRABAJANDO EN BLANCO, ETC.
ES UN DERECHO A QUE NOS AYUDEN URGENTE EST NO VA MAS, NUESTROS ALIMENTOS SON MUY ELEVADOS PARA NUESTRO BOLSILLOS. URGENTE !!!!!! COMUNICARCE ROBINSON O ELBA 02954-15-698041
#89 by robinson on 20-junio-2010 - 7:57 pm
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SOBRE EL QUESO, DEBERIA COMPRAR UNO, HACERLO ANALISAR POR TUS MEDIOS, Y SEGUN LOS RESULTADOS, PONERTE EN CONTACTO CON UN ABOGADO Y INICIAR UNA DENUNCIA A LA EMPRESA Y CADENA DE SUPERMERCADO…. SI TUVIERAMOS CONFORMADA LA ONG NO PASARIA ESTO Y NINGUNA DISCRIMINACION COMO EH ESCUCHADO, Y EH VISTO.
TENGO LA GUIA 2010 DE CELIACOS.
#90 by robinson on 20-junio-2010 - 8:00 pm
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HOLA OLGA, POR FAVOR ES ALGO REDICULO LO QUE ESTA HACIENDO TU MUNICIPIO. DEBERIA DARTE 2 CAJAS POR MES Y AYUDARTE DE OTRA MANERA. COMUNICATE CONMIGO.
#91 by robinson on 20-junio-2010 - 8:06 pm
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SUGERENCIAS: CADENA DE SUPERMERCADOS(CHANGO MAS Y ESPECIES LA TORRE) QUE DISPONEN DE ALGUNOS ALIMENTOS COMO PAQUETE DE FIDEO,GALLETITAS, GRISINES,BIZCOCHUELO,HARINAS,ALFAJORES DE MAIZENA,SALSA DE TOMATE ALCO, DULCE DE LECHE ILOLAY O SERENISIMA,ACEITE CORAZON O MAZOLA,BARRITA DE DULCE DE LECHE MARCA VAQUITA,PAN RAYADO,QUESO CREMOSO SERENISIMA,ETC.
OJO LOS PRECIOS SON MUY ELEVADOS Y DAN MUCHAS SORPRESAS PARA NUESTROS BOLSILLOS SE LOS ASEGURO
#92 by vanesa on 28-junio-2010 - 3:17 pm
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hola soy celiaca hace 13 años tengo 22 y hace 8 que no me hago controles yo me atendia en el casa cuna pero como no voy hace años noce como hacer me gustaria empesar de nuevo obiamente hago la dieta mi mail es vans_2007@hotmail.com tambien me gustaria si me pueden mandar lista de medicamentos! gracias
#93 by guadalupe on 11-julio-2010 - 1:19 pm
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hola….hace tres años que se me declaro la enfermedad.Me gustaria saber si es cierto que hay una pension por discapacidad para celiacos…de ser asi que tengo que hacer…vivo en un pueblo de la provincia de buenos aires….y es IMPOSIBLEEEEEE conseguir productos para celiacos…(y como a todos les pasa los precios son muy elevados )y la caja de productos para celiacos que los provee el estado no llega y cuando llega viene todo vencido. por favor necesito una respuesta….desde ya muchas gracias
#94 by Mary on 11-julio-2010 - 8:54 pm
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Es tan feo que todavia ni los medicos tengan idea de que recetarnos y solo nos mediquen con corticoides, ya que no saben que la enfermedad celiaca tiene grados…Ademas en los supermercados estan los productos nuestros contaminados,porque la manipulacion no es debidamente organizada ni respetada.
#95 by Mary on 11-julio-2010 - 8:59 pm
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Ni hablar del valor economico de los productos para celiacos…cuesta comprarlos y me parece un abuso ya que la celiaquia es una enfermedad no un placer, y con el reintegro de la mutual no te alcanza ni para una semana
#96 by marcela on 26-julio-2010 - 3:23 pm
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hola me lamo marcela soy mama de dario de 11 años que es celiaco se lo diagnosticaron a los 3 años , hoy lo que me ocurre es que ya no tiene depociciones constantes, como las tenia en aquella epoca si llegaba a comer algo que no correspondia!!hoy no se como darme cuenta si es que ha comido algo que no corresponde ya que hoy esta con la dieta medio rebelde , mi miedo es que en el colegio este comiendo algo , puede que cuando come algo con gluten tenga como un principio de bronco-espasmos?alguien sabe , hablo con la terapeuta y me explica que es normal que los chicos a esta edad despues de un tiempo les pasa de rebelarce a LA DIETA …LA BIOPSIA QUE LE HICIMOS DIO GRADO 4 A LOS TRES AÑOS NO LE HE VUELTO A HACER OTRA !!!BUENO GRACIAS MARCELA
#97 by fatima on 28-julio-2010 - 6:09 pm
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Hola soy fatima de concordia Entre Rios,soy casada y me gustaria saber si me corresponde la pension porque no tengo un buen ingreso de dinero. y necesito los productos y no me alcansa la plata..
#98 by vanesa on 29-julio-2010 - 12:01 am
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hola mi nombre es vanesa , tengo 27 años y ayer e netere que soy celiaca,quiero sabe si hay alguna pastilla anticonceptiva que sea apta para nosotras
muchas gracias
#99 by adriana on 1-agosto-2010 - 11:03 am
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hola soy adriana de lanus soy celiaca hase cuatro años y el unico beneficio que tengo es una caja que me da la munisipalidad de lanus es una verdadera verguensa yo.yo quiero saver que veneficios tiene el celiaco me gustaria que se contacten conigo con suma urgencia me gustaria que me digan donde puedo anotarme para aprender a cosinar nuestra comida y luego enseñarselas a todos los que padesemos esta enfermedad espero respuestas favorables desde ya muchos saludos a todos mi meil es adriana_maqueda@hotmail.com
#100 by Carlos Benítez on 20-agosto-2010 - 9:37 am
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Hola soy Carlos de concordia Entre Rios,tengo una hija celiaca de 16 años y me gustaria saber si le corresponde la pension. Se necesita un buen ingreso de dinero ya que los productos son caros y la plata no alcanza…
#101 by juan fernandez rondon on 23-agosto-2010 - 12:01 am
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hola, a mi señora le diagnosticaron celiaquia hace muy poco y me dijeron que puede ser beneficiaria de una pension aunque los dos trabajamos en blanco.es posible?la verdad es que con el precio que tienen los alimentos no nos alcanza.
#102 by Analía Ibañez on 23-agosto-2010 - 2:18 pm
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soy de El Bolsón Rio Negro.
mi hija es celiaca.
Si quieren recetas o datos escriban!! Besos
anyi_ali@hotmail.com
#103 by mariana romero on 6-septiembre-2010 - 3:53 pm
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tengo 2 hijos celiacos,quisiera saber si estan dando certificado por discapacidad,para asi poder obtener una pension
#104 by MARGARITA on 11-septiembre-2010 - 10:17 pm
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hola, mis dos hijas y yo somos celiacas, quisiera saber que puedo hacer para obtener alguna ayuda, ellas viven en Bs As, van a la facultad y yo en Entre Ríos. Gracias
#105 by Alejandra Cuccia on 27-septiembre-2010 - 9:16 pm
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Hola, soy Alejandra (29 años) y vivo en Santiago del Estero, también soy celíaca declarada hace medio año. Agradezco a Dios haber tenido el ímpetu y las fuerzas para que mi diagnóstico sea lo más rápido y certero posible, pues si yo no hubiera incistido en que siguieran buscando qué tenía, todavía andaría enferma. En menos de un año comencé los síntomas, me diagnosticaron y recuperé los kilos que había bajado. Me siento más que bien y no me importa ser celíaca, soy feliz por estar viva.
Mi email es ma_cuccia@yahoo.com.ar por si alguien quiere hablar del tema. Superar solos es muy importante, sobre todo cuando es difícil que la familia colabore. Somos celíacos y qué!
#106 by Jesica on 29-septiembre-2010 - 2:28 pm
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Hola, quería saber si existe alguna marca de palmitos y choclo en lata apta para celíacos y sin se puede consumir cualquier aceite.
Muchas Gracias.
#107 by jessica on 4-octubre-2010 - 10:36 pm
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Hola! Este mail lo envío sumamente indignada y agotada de la gente de ACELA, a la cual estoy haciendo tramites para denunciarla…. no se todavia si por discriminación o por estafa, pero seguro la denuncia llegará. Les cuento que en Expo ACELA 2010 que se llevó a cabo en el mes de septiembre en el lugar que siempre consiguen, obvio con beneficios propios como todo, NO me quisieron vender el libro con el listado de alimentos, por no tener la cuota al día. Ellos se llenan diciendo ( ASOCIACION SIN FINES DE LUCRO ),…. Y SI , esto es argentina…. Pero lo que mas me indigna es que la gente que es celiaca como yo, los siga aliemtando y avalando, pagando esa cuota mensual. Creo que todos unidos deberiamos hacer algo contra esta asociacion sin fines de lucro, y luchar para que dejen de comerciar con nuestra ENFERMEDAD, que eso es lo que es, una enfermedad. Ese día obviamente tuve una discución muy grande en el predio y lo peor de todo es que una de las señoras, que dice COLABORAR CON LA ASOCIACION SIN FINES DE LUCRO, se reia en mi cara por no poder yo, acceder al libro… HORROSO TODO!!!! pero no quedará así…… Desde ya esta es mi experiencia y queria transmitirla y compartirla…. Saludos, Jessica ( celíaca ).
#108 by edinson on 13-octubre-2010 - 11:53 pm
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hola mi nombre es edinson soy de los andes, chile celiaco desde los trece años y ahora tengo treinta y tres quien quiera contactarse con migo mi correo electronico es edoxplaza@yahoo.com
#109 by Carmen Garcia on 14-octubre-2010 - 8:07 pm
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Hola soy de la provincia del Chaco, cuidad de machagai, soy mamá de una nena celiaca de 7 años en esta ciudadd estamos totalmente desamparados hace ya mas de 8 meses que no recibimos no siquiers el bolson micesrable que nos envias es una verguenza la foemaen que son discrimados los celiacos.
#110 by nuria on 15-octubre-2010 - 8:20 pm
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Hola soy de mar del plata, hace 3 años me diagnosticaron celiaquia, ademas soy diabetica hace 29 años y hipotiroidea hace 20, completita, quisiera saber si existe algun subsidio para los alimentos, o a donde tengo que dirigirme en mar del plata, muchas gracias..
#111 by vanesa on 30-octubre-2010 - 1:50 am
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hola soy vanesa de sanjuan y tengo mi hija de 2 ano que es celica quiero saber si le coresponde una pencion o algun beneficio.yo esto averiguando pero no me dicen nada les dejo mi correo vaneg3s_07@hotmail.com
#112 by Carina on 6-noviembre-2010 - 11:54 am
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quisiera saber donde realizarme los estudios para celiacos en forma gratuita ya que mi obra social osprera no los cubre y no dispongo de la canidad que me piden para realizarlos.
tengo 37 años y recien me lo diagnosticaron, por la sintomatologìa supongo que mi hija también padece la misma enfermedad.
desearìa me enviaran lugares oficiales en la web para asesorarme correctamente
#113 by mariana on 11-noviembre-2010 - 1:28 am
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hola como estan? tengo unas preguntas para hacer y quisiera saber si alguien me podria ayudar…
Primero quisiera saber que anticonceptivas son aptas para los celiacos.
Segundo es… en varias paginas e inclusive algun grupo del facebook me comentaron que los celiacos aparte de recibir las cajas, podriamos solicitar el certificado de discapacidad.Y alguna pension.
yo me dirigi en mi provincia de salta al ministerio de desarrollo humano… me dieron el turno y despues de dos meses q me toco volver me dijieron q no…
quiero saber si es asi… o me dirigi a un lugar equivocado.. ya la data la saque de internet…
estare agradecida de su ayuda
muchas gracias
#114 by Claudia on 15-noviembre-2010 - 11:02 pm
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HOLA ESTE ES UN HUMILDE COMENTARIO REFERENTE A LO QUE EXPRESA EL MAIL DE jessica.
MI NOMBRE ES CLAUDIA SOY DE NQN, NO PERTENEZCO A ACELA ESTOY NUECLEADA EN OTRA ASOCIACION LOCAL LLAMADA ACEN, QUE ESTA PRESENTE EN MI CIUDAD.
PERO CREO QUE COMO CUALQUIER ORGANIZACION SIN FINES DE LUCRO ACELA O EL QUE SEA NECESITA SOSTENER LOS GASTOS QUE GENERA EL CAPACITAR, ASESORAR U OFRECER CONOCIMIENTO DE COCINA PARA LOS NUEVOS CELIACOS QUE RECURREN A ELLOS. AL SER UNA ORGANIZACION SIN FINES DE LUCRO, ES RARO RECIBAN SUBSIDIOS O ALGUIEN SUBENCIONE LOS COSTOS QUE GENERA LA IMPRESION DE LOS LIBROS, EL TRASLADO (GASTO DE COMBUSTIBLE, ETC)
POR LO TANTO, ES NECESARIO A VECES REFLEXIONAR UN POCO QUE JUSTAMENTE ESTO NO ES DEL ESTADO, ESTA CREADO POR PERSONAS CON LAS MISMAS SITUACIONESE INQUIETUDES QUE DEDICAN SU TIEMPO PARA LOS DEMAS RESTANDOLES A SU FAMILIA.
SI NO SE QUIERE PERDER TIEMPO EN DISCUCIONES SE CUENTA CON LOS LISTADOS DEL ANMAT QUE SON GRATUITOS (DEL GOBIERNO) Y ESTAN DISPONIBLES EN LA WEB PARA TODOS SIN NECESIDAD DE DESGASTARSE EN PELEAS CON OTROS.
ASOCIACIONES QUE CON ERRORES U ACIERTOS LUCHAN POR QUE ESTA CONDICION INTESTINAL SEA RECONOCIDA Y RESPETADA… QUE NOS PERMITA SALIR DE CASA SIN TENER QUE ANDAR CON EL TAPER DE COMIDA BAJO EL BRAZO Y LOGREMOS CONSEGUIR ALIMENTO Y COMIDA EN EL LUGAR QUE SEA Y EN CUALQUIER MOMENTO.
NADA MAS SALUDOS!!!
#115 by elida rosales on 17-noviembre-2010 - 4:34 pm
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hola a todos.tengo28 años y estoy con miedo porque tengo algunos sintomas de ser celiaca.tengo un hermano q tiene lo mismo desde pequeño,aunque no nos conocemos creo que lo unico q nos une es esta enfermedad.hace casi 8 años que vengo sufriendo de yagas constantes en mi voca,cada vez es mas doloroso.tengo miedo porque no se como me van a salir los estudios.tengo 2 nenas y mi marido q me apoya en todo , bueno saludos a todos y q dios los vendiga
#116 by sofia on 29-noviembre-2010 - 6:11 pm
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hola soy sofia de fromosa soy celiaca queria saber si hay alguna credencial o carnet para obtener descuentos en alimentos ya que son muy caros.por favor avisenme cualquier cosa a este correo.gracias
#117 by adriana on 26-diciembre-2010 - 10:55 am
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soy celiaca y me gustaria saber como puedo conseguir la trajeta para celiacos ..
desde ya muchas gracias